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Tag: Ehlers-Danlos Syndrome

EDS Zebra Club Member Spotlight
Member Spotlight

EDS Zebra Club Member Spotlight: Emily

May is Ehlers-Danlos Syndrome Awareness Month and the EDS Zebra Club members want to do our part in spreading awareness. This Member Spotlight features Emily who shares about her journey to a diagnosis which emphasizes the importance of spreading awareness of EDS.
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Belinda AddisonMay 22, 2025May 22, 2025Ehlers-Danlos Syndrome, Member Spotlight
Complicated Screening - EDS Zebra Club - You Are The Power - 11Alive Rebecca Lindstrom
Events

Join the EDS Zebra Club, You Are The Power and 11Alive’s Rebecca Lindstrom for “Complicated” Screening on 5/31/25

Join You Are The Power leadership team members, Belinda Addison, founder of EDS Zebra Club, and Senior Investigative Reporter Rebecca Lindstrom from 11Alive News Atlanta for a screening of the documentary Complicated.

Belinda AddisonMay 20, 2025May 25, 202511Alive Rebecca Lindstrom, Complicated, Ehlers-Danlos Syndrome, Events, You Are The Power
Stephanie
Reunited Fractured Zebra Families

Fractured Zebra Families – Stephanie’s Story

Stephanie’s Story The EDS Zebra Club is home to many Fractured Zebra Families. We hope that by highlighting what is happening to our families with Ehlers-Danlos Syndrome that we can do our part to bring about much needed change to protect the
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Belinda AddisonMay 6, 2025May 28, 2025Ehlers-Danlos Syndrome, Reunited Fractured Zebra Families
Tasha
Fractured Zebra Families

Fractured Zebra Families – Tasha’s Story

Tasha’s Story The EDS Zebra Club is home to many Fractured Zebra Families. We hope that by highlighting what is happening to our families with Ehlers-Danlos Syndrome that we can do our part to bring about much needed change to protect the
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Belinda AddisonMay 6, 2025May 28, 2025Ehlers-Danlos Syndrome, Fractured Zebra Families, Tasha
The Tallon's
Fractured Zebra Families

Fractured Zebra Families – Rachel’s Story

Rachel’s Story The EDS Zebra Club is home to many Fractured Zebra Families. We hope that by highlighting what is happening to our families with Ehlers-Danlos Syndrome that we can do our part to bring about much needed change to protect the
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Belinda AddisonMay 5, 2025May 28, 2025Ehlers-Danlos Syndrome, Fractured Zebra Families
Jenna
Reunited Fractured Zebra Families

Fractured Zebra Families – Jenna’s Story

Jenna’s Story The EDS Zebra Club is home to many Fractured Zebra Families. We hope that by highlighting what is happening to our families with Ehlers-Danlos Syndrome that we can do our part to bring about much needed change to protect the
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Belinda AddisonApril 27, 2025May 28, 2025Ehlers-Danlos Syndrome, Reunited Fractured Zebra Families

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