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Hernandez Family
Events

The Hernandez Family

The Hernandez Story On 5/23/25 Parents Behind The Pinwheels shared the update so many of us had been praying to hear for The Hernandez Family. NOT GUILTY ON ALL CHARGES!!! This morning, a jury found Matt and Tuckey Hernandez NOT guilty on
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Belinda AddisonMay 28, 2025May 28, 2025Fractured Families
Belinda and Easton
Belinda's EDS Journey

When Our Kids With Ehlers-Danlos Syndrome go Undiagnosed

Back when I was in the midst of my life-saving brain & spinal surgeries, I feared that I was going to lose custody of my children thanks to CHOA and school overreach. This is not an isolated incident— it happens too often
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Belinda AddisonMay 25, 2025May 25, 2025Belinda's EDS Journey
EDS Zebra Club Game Day
Events

6-21-25 EDS Zebra Club Game Day Social Event

Join us on Saturday, June 21, 2025 in Acworth, GA for a fun time playing some Board Games or Cards with your Zebra Family. ♟️🃏 Feel free to bring your favorite game or we’ll have plenty to choose from such as UNO,
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Belinda AddisonMay 22, 2025May 22, 2025Events
EDS Zebra Club Member Spotlight
Member Spotlight

EDS Zebra Club Member Spotlight: Emily

May is Ehlers-Danlos Syndrome Awareness Month and the EDS Zebra Club members want to do our part in spreading awareness. This Member Spotlight features Emily who shares about her journey to a diagnosis which emphasizes the importance of spreading awareness of EDS.
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Belinda AddisonMay 22, 2025May 22, 2025Ehlers-Danlos Syndrome, Member Spotlight
Complicated Screening - EDS Zebra Club - You Are The Power - 11Alive Rebecca Lindstrom
Events

Join the EDS Zebra Club, You Are The Power and 11Alive’s Rebecca Lindstrom for “Complicated” Screening on 5/31/25

Join You Are The Power leadership team members, Belinda Addison, founder of EDS Zebra Club, and Senior Investigative Reporter Rebecca Lindstrom from 11Alive News Atlanta for a screening of the documentary Complicated.

Belinda AddisonMay 20, 2025May 25, 202511Alive Rebecca Lindstrom, Complicated, Ehlers-Danlos Syndrome, Events, You Are The Power
Tasha
Fractured Zebra Families

Fractured Zebra Families – Update – Tasha’s Story

Call to Action for Tasha The EDS Zebra Club is home to many Fractured Zebra Families and this is an Urgent Call to Action with an update on Tasha’s Story shared originally by You Are The Power. We hope that you will
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Belinda AddisonMay 7, 2025May 28, 2025Tasha
Stephanie
Reunited Fractured Zebra Families

Fractured Zebra Families – Stephanie’s Story

Stephanie’s Story The EDS Zebra Club is home to many Fractured Zebra Families. We hope that by highlighting what is happening to our families with Ehlers-Danlos Syndrome that we can do our part to bring about much needed change to protect the
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Belinda AddisonMay 6, 2025May 28, 2025Ehlers-Danlos Syndrome, Reunited Fractured Zebra Families
Tasha
Fractured Zebra Families

Fractured Zebra Families – Tasha’s Story

Tasha’s Story The EDS Zebra Club is home to many Fractured Zebra Families. We hope that by highlighting what is happening to our families with Ehlers-Danlos Syndrome that we can do our part to bring about much needed change to protect the
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Belinda AddisonMay 6, 2025May 28, 2025Ehlers-Danlos Syndrome, Fractured Zebra Families, Tasha
The Tallon's
Fractured Zebra Families

Fractured Zebra Families – Rachel’s Story

Rachel’s Story The EDS Zebra Club is home to many Fractured Zebra Families. We hope that by highlighting what is happening to our families with Ehlers-Danlos Syndrome that we can do our part to bring about much needed change to protect the
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Belinda AddisonMay 5, 2025May 28, 2025Ehlers-Danlos Syndrome, Fractured Zebra Families
Jenna
Reunited Fractured Zebra Families

Fractured Zebra Families – Jenna’s Story

Jenna’s Story The EDS Zebra Club is home to many Fractured Zebra Families. We hope that by highlighting what is happening to our families with Ehlers-Danlos Syndrome that we can do our part to bring about much needed change to protect the
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Belinda AddisonApril 27, 2025May 28, 2025Ehlers-Danlos Syndrome, Reunited Fractured Zebra Families

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