The EDS Zebra Club in Georgia is a first of its kind support group for those with Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorder who is known for being hands on in the EDS Community. #ZebrasHelpingZebras.
We are on a mission to make a positive impact on the EDS Community. From navigating a diagnosis and seeking knowledgeable providers to meeting up with other Zebras throughout the North Metro Atlanta Area for fun social events, we’ve got you covered.
We believe that we are stronger together and would love to have you as part of our Zebra Family.
5/31/25 – Screening of “Complicated”
The EDS Zebra Club and You Are The Power have partnered for a FREE screening of the documentary Complicated.
Join You Are The Power leadership team members, Belinda Addison, founder of EDS Zebra Club, and Senior Investigative Reporter Rebecca Lindstrom from 11Alive News Atlanta for an in-person screening of the documentary Complicated.
Event Date: Saturday, May 31, 2025 at 2:30PM in Alpharetta, GA
Our Support
Our Facebook Group provides a space that is both uplifting and encouraging. Although we offer everything you would find in a traditional support group, we do things much differently here. We celebrate our wins, encourage self-care and self-love, practice gratitude and offer many other ways to support one another in a positive way as we understand the huge toll a difficult health journey can have on our emotional and mental health.
Being a part of a community with other zebras who can truly understand what it’s like to live with EDS and HSD can help us feel less alone on this journey and we would love to welcome you into our Zebra Family. It is our hope that through sharing our personal experiences many will build valuable relationships resulting in lifelong zebra friends.
Our Facebook Group is exclusive only to those with Ehlers-Danlos Syndrome, Hypermobility Spectrum Disorder and those exploring a diagnosis. When submitting a request to join, we require that all membership questions be answered thoroughly and the group rules be checked off as “agreed” upon before considering new member requests. If you are a medical professional, we encourage you to instead check out our tab above, “For Providers.”
The EDS Zebra Club truly values and appreciates our EDS knowledgeable providers whom we affectionately refer to as our VIP’s or “Very Important Providers.”
We understand the additional educational commitment required to take on our condition and we are forever grateful that you’ve chosen to provide care to the EDS Community.
The EDS Zebra Club offers a first of its kind Interactive Peer Recommended EDS Knowledgeable Provider List that allows members to add those who have provided them with exceptional care— but there is a true need for this list to grow in all areas of care, and we want to do everything possible to make this happen.
If you are an EDS Knowledgeable provider or are interested in becoming one, we would love to connect with you. Please reach out to us through our Contact Form.
We offer many valuable services as your free liaison to the EDS Community and are excited about the upcoming launch of our new “VIP by EDS Zebra Club” program that includes an exclusive invitation only group just for our Georgia EDS providers.
Our Georgia “VIP by EDS Zebra Club” program would love to assist you with any of the following and more:
✨ Sharing your announcements as a liaison to the EDS Community such as—
✔️ Recruitment for a Study
✔️ Speaking at a Conference
✔️ Offering New Services
✔️ Hosting a Webinar
✨ Additional Opportunities:
✔️ Connect with other EDS Knowledgeable Providers and build a referral network
✔️ Sign up as a VIP Guest Speaker for one of our in-person or virtual support meetings
✔️ Help us put out valuable content through an article on our blog or be one of our featured VIP providers
✔️ Invites to special events with our members
✔️ New Opportunities and Services as our program grows, valuable feedback is received, and we launch more features
As part of a “Thank you” for all of your efforts, we encourage our Georgia “VIP by EDS Zebra Club” providers to join our members at our end of the year Holiday Party, “Zebrasgiving” where we recognize your contributions to our Community.
Request your free EDS Zebra Club goodie basket and flyers for patients whom would find our support valuable through our contact form. This offer is currently available to providers in the North Metro Atlanta Area, but our team is growing, and we will be expanding this offer as we find additional volunteers to deliver to your area. Feel free to reserve yours now.
We are excited to connect with you— whether through email, a call or over lunch, let’s make plans to discuss how the EDS Zebra Club can be of service to you and work together to make a difference in the EDS Community.
Member Favorites
You Are The Power
You Are The Power is a membership-based nonprofit founded and operated by Spike Cohen that is leading the way to important change here in Georgia and across the US to protect the families of medically fragile children including those with Ehlers-Danlos Syndrome.
You Are The Power has advocated to reunite many factually innocent families who were torn apart after their medically fragile children were mistakenly diagnosed as abused including many of our Fractured Zebra Families.
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View Fractured Zebra Families
Ehlers-Danlos and Hypermobility Clinic
Come relax in a comfy recliner, enjoy a sparkling beverage and prepare to experience the first treatment program for Ehlers-Danlos Syndrome that’s not only painless and non-invasive, but utilizes sought after cutting-edge technology that can target your specific needs.
Dr. Jason Addison in Kennesaw, Georgia has helped countless EDS patients reduce their pain, manage symptoms, improve joint stability and regain their quality of life.
This is the game-changer you have been waiting for– whether in the Clinic or from the comfort of home with your own prescribed device– reliable relief is here.
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Breathe: A Mindful Movement Studio
Breathe: A Mindful Movement Studio is a Pilates studio that truly gets hypermobility and other unique conditions. We blend mindful, science-backed techniques with a supportive environment. Our sessions are gentle, personalized, and focused on helping you feel more stable, strong, and connected in your body—without pushing past your limits. The focus is on calming the nervous system and moving smarter, not harder.
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What Our Members Say
I feel so grateful to have found this community!
It is a great resource and always provides a source of positivity and support!
I’m very thankful for this encouraging group. There is much camaraderie. I love the daily mindful posts. It encourages me to look at what is good in my life and keep chugging. Our group definitely encourages each other. Many share personal experiences and valuable information we can all learn from. We have zoom meetings, and local outings & get togethers. I love our unique zebra family
I absolutely love being a member of this group! I have learned so much from my peers and finally feel validated and not misunderstood. There is no judgement, no strange looks when I talk about my struggles. And, Belinda organizes some really fun events so we can actually get to know one another! The group is a godsend!
